Posts tagged ‘Crohn’s’

06.06.2012

Meeting the Dietician

by marilynk

In November, I met with a dietician who is attached to the gastroenterology clinic that my Crohn’s specialist belongs to. I’m glad I met with her, but I honestly didn’t find the appointment all that helpful.

Before the appointment, I had to keep a food diary for three days so the dietician could see what my eating habits are like: what foods, when and how often I eat and if I noticed any symptoms that were tied to certain meals. She didn’t see any nutritional deficiencies in my diary and she liked how the meals were spaced out. Her only suggestions were to:

  1. Eat at least 3 food groups at meals and 2 at snacks (so throughout the day you have your bases covered).
  2. Continue eating small meals throughout the day (it’s easier on my digestive system than 3 large meals).
  3. Continue eating as wide a variety of foods as possible…until something triggers symptoms (the goal is to get as many nutrients from actual food as possible).

We also talked about the two kinds of fibre and how to use each to address symptoms. Of course, my symptoms are atypical, so that’s not much of a worry for me at this point. And we talked about pre- and pro-biotics (personally, I think these are mostly marketing hype – I’ll stick to greek yoghurt). There is some evidence that omega-3 fatty acids are beneficial and I should probably eat more fish, but I think I’ll stick to flax seed and nuts. It was a nice chat and the dietician is a lovely woman. I just didn’t feel like “keep doing what you’re doing until you feel horrible, then stop eating the thing that made you feel bad” was particularly useful advice.

Things were going pretty well diet-wise before Christmas, but fell off the rails in the last few months. You’ll see in upcoming posts that I’m starting to get things back on track.

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12.11.2011

The Emotional Side of Being Diagnosed with Crohn’s

by marilynk

Part of the reason I didn’t get any posts up in October was that I was dealing with a lot of emotional stuff around my Crohn’s diagnosis. I’ve been around Crohn’s my whole life (my grandfather, dad, and sister all have it) and I thought I was prepared for this diagnosis, so I was surprised when all this stuff started coming up. I’m not quite sure how to work my way through it. Details aren’t for everyone, so feel free to go on your way without hitting the jump.

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22.09.2011

Health Update

by marilynk

Here’s a quick update on where things are with my health. I know not everyone wants to know about medical details, but I’ve had a few questions so please click through to read the full post if you’re interested (also, look at me learning how to use the “More” tag!). For those that aren’t interested in the details, know that I’m doing really well and just have to be careful about catching any infections, so please let me know if you’re sick or getting sick and please don’t be offended if I cancel plans if you are!

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13.08.2011

Zero Energy

by marilynk

The weirdest thing in dealing with Crohn’s (or whatever it is) without any kind of treatment is how much my energy levels fluctuate from day to day. There’s no identifiable pattern. It doesn’t seem to be tied to what I eat or when (that I can track anyway). There doesn’t seem to be anything I can do.

Today I had zero energy. Didn’t make it to the market, or out to the EOGG farm (more on that in a future post). I managed to run some errands with my Mom and my sister, but I spent the whole time looking for places to sit down. Ugh. I got back to my place at about 3 pm and have mostly just stayed on the sofa since then. Mustering up the energy to write this post was hard.

I hope when I get treatment figured out that my energy levels come back to normal. Feeling like this sucks!

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02.08.2011

When a Confirmed Diagnosis Isn’t Confirmed

by marilynk

After I got the results of the barium swallow test (highly unpleasant experience) in July, I had worked through all the steps in accepting my “official” diagnosis of Crohn’s Disease. I’d cried, was mad, didn’t want to talk about it, and finally had accepted it and was ready to talk about treatment options.

Today was Specialist Day. I expected to have more tests done to see the extent of the disease, but I expected to be working on the assumption that I have Crohn’s. Apparently, that’s still up in the air…well, sort of. The Specialist said it’s 70% likely that I have Crohn’s, but my symptoms are atypical, so he wants to check things out some more.

So, more blood work right away, then actual scopes of basically my whole GI tract in September (I expect an even more unpleasant experience), then hopefully we’ll know for sure what ails me and I can start treating this and feeling better on a consistent basis.

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